#4877
Expert Nurse
Suzanne McGettigan

Hi Lisa–
We have had several patients develop new or worsening sensorineural hearing loss, characterized by tinnitus. We have not seen or recognized other types of hearing loss.
For two patients, tubes were surprisingly effective–both of those had developed very early on in treatment.
For the remainder, effective treatment has been a little more elusive.
Oral corticosteroids have been effective in a small portion patients, but not in most. We have attempted holding further immunotherapy in a few patients with possible improvement. With this symptom, it is hard to tell if the tinnitus is actually better or if lifestyle modifications as a result have led to improvement in the tolerability of this symptom.
It is a tough one.
thanks for bringing this up.
Suzanne